Melissa Verleg (middle) has been fighting for access to medication for her cystic fibrosis. (Photo submitted)

Okanagan Walks to Make Cystic Fibrosis History

Penticton and Vernon two of 11 that have events taking place Saturday, May 26

During Cystic Fibrosis Awareness Month, participants from more than 70 communities in Canada will come together to participate in The Walk to Make Cystic Fibrosis History on Sunday, May 26.

The Walk to Make Cystic Fibrosis History is returning to Vernon at Polson Park.

“This is the first walk recently. There used to be a walk here years ago but there wasn’t anyone to run it,” said Melissa Verleg, who stepped up to orgnaize the event this year. “I’m not sure when the last one was.”

Verleg, who has spent over a year fighting the government for rights to medication for her cystic fibrosis, attended the walk in Penticton with her family last year. She lost access to a medication called Orkambi on Jan. 20, 2018 and with it, she lost the ability to perform even the simplest of tasks such as cooking dinner and playing with her kids.

When The Morning Star reached out to ask if she has had any success, she wrote, “I don’t have much of an update pertaining to my fight for Orkambi. The government still hasn’t changed their stance on anything.”

Related: MLA pushing province and pharmaceutical to save Vernon woman

Related: Melissa’s battle hurts

This year marks the 15th anniversary of the Canadian Walk to Make Cystic Fibrosis History. Registration begins at 9:30 a.m. and the walk is set to take place around 10 a.m. Vernon’s walk is three km long and will end with a closing ceremony at 11 a.m. Organizers ask that no pets be brought to the walk.

“I welcome everyone to join me and Walk to Make Cystic Fibrosis History,” said Verleg.

More than 4,300 Canadians live with Cystic Fibrosis, the most common fatal genetic disease among Canadian children and young adults. There is no cure.

To register or donate, visit www.cysticfibrosis.ca.

Related: Vernon puts wheels in motion for bike to work week

Related: Tickets for annual hospital gala almost sold out

To report a typo, email:
newstips@vernonmorningstar.com
.


@VernonNews
newstips@vernonmorningstar.com

Like us on Facebook and follow us on Twitter.

Just Posted

WildsafeBC comes to the Okanagan to reduce wildlife conflict

Bear activity on the Westside has been an issue in the past few weeks

93rd Okanagan music festival wraps up with gala celebration

The 2019 Penticton Kiwanis Music Festival finish with gala celebration and awards evening

Column: A solar pioneer in the Okanagan rides among us

This Summerland octogenarian has been producing his own electrical energy for more than 20 years

Woman in hospital after being thrown off horse

She was airlifted to Kelowna General Hospital from Okanagan Falls

Okanagan-Shuswap weather: cloudy

Environment Canada is calling for a similar day tomorrow.

More available child care spaces coming to the Okanagan

B.C. government invests $250,000 into building a child care facility in West Kelowna

Pesticide use in Okanagan park prompts warning

Civilian goes out of his way to post caution signs

BC Wildfire Service to send 267 firefighters to Alberta

Sufficient personnel, resources remain in B.C. to respond to any fire activity

Car crashes into semi-truck in West Kelowna

Highway 97 heading northbound by Boucherie Rd. closed

LETTER: Fletcher ‘blurs reality’ on B.C. union public construction

Bridge, highway projects awarded to companies, not unions

Killer of Calgary mother, daughter gets no parole for 50 years

A jury found Edward Downey guilty last year in the deaths of Sara Baillie, 34, and five-year-old Taliyah Marsman

Reminder: recycle your plant pots

Plastic flowerpots and plant trays can all be recycled

South Okanagan cannabis dispensary operator that was raided is going to trial

Store operator is facing one charge of possession for the purpose of trafficking

Federal government funds millions to help B.C. police spot drugged driving

Many police departments have expressed wariness about using the only government-approved roadside test

Most Read