Melissa Verleg (middle) has been fighting for access to medication for her cystic fibrosis. (Photo submitted)

Okanagan Walks to Make Cystic Fibrosis History

Penticton and Vernon two of 11 that have events taking place Saturday, May 26

During Cystic Fibrosis Awareness Month, participants from more than 70 communities in Canada will come together to participate in The Walk to Make Cystic Fibrosis History on Sunday, May 26.

The Walk to Make Cystic Fibrosis History is returning to Vernon at Polson Park.

“This is the first walk recently. There used to be a walk here years ago but there wasn’t anyone to run it,” said Melissa Verleg, who stepped up to orgnaize the event this year. “I’m not sure when the last one was.”

Verleg, who has spent over a year fighting the government for rights to medication for her cystic fibrosis, attended the walk in Penticton with her family last year. She lost access to a medication called Orkambi on Jan. 20, 2018 and with it, she lost the ability to perform even the simplest of tasks such as cooking dinner and playing with her kids.

When The Morning Star reached out to ask if she has had any success, she wrote, “I don’t have much of an update pertaining to my fight for Orkambi. The government still hasn’t changed their stance on anything.”

Related: MLA pushing province and pharmaceutical to save Vernon woman

Related: Melissa’s battle hurts

This year marks the 15th anniversary of the Canadian Walk to Make Cystic Fibrosis History. Registration begins at 9:30 a.m. and the walk is set to take place around 10 a.m. Vernon’s walk is three km long and will end with a closing ceremony at 11 a.m. Organizers ask that no pets be brought to the walk.

“I welcome everyone to join me and Walk to Make Cystic Fibrosis History,” said Verleg.

More than 4,300 Canadians live with Cystic Fibrosis, the most common fatal genetic disease among Canadian children and young adults. There is no cure.

To register or donate, visit www.cysticfibrosis.ca.

Related: Vernon puts wheels in motion for bike to work week

Related: Tickets for annual hospital gala almost sold out

To report a typo, email:
newstips@vernonmorningstar.com
.


@VernonNews
newstips@vernonmorningstar.com

Like us on Facebook and follow us on Twitter.

Just Posted

$250,000 worth of property stolen from Penticton storage

Police are investigating after a possible theft on the weekend

Bizarre alleged assault trial where Coalmont’s only payphone destroyed

Not guilty plea to assault charges related to striking man in telephone booth with vehicle

UPDATE: Lightning causes three wildfires east of Osoyoos

It is believed the fires started by a lightning storm

Controversial anti-abortion film to be screened in Penticton

Unplanned will be shown at the Penticton Landmark theatre

Mix of sun and cloud for the Okanagan-Similkameen Shuswap

Chance of showers for much of the region this afternoon

Okanagan-based pop star Andrew Allen is back with a new band

Singer-songwriter Andrew Allen is bringing his new band home for a concert this Friday

Okanagan man grows tomato with an… unusual shape

The man could only conclude that it was a decidedly “male” tomato.

Provincial health body refuses to release full findings of cancer triage system audit

Information and Privacy Commissioner asked to review redactions

Southern resident killer whale died of blunt trauma, likely from ship

J34 was found more than two years ago near Sechelt, but the necropsy findings have now been released

Supportive housing first step to healing: BC Housing CEO

Shayne Ramsay explains changes to Rutland’s McCurdy development

Central Okanagan motorcycle crash causes two impaired driving investigations

The driver’s injuries, although serious, are not believed to be life-threatening in nature

B.C. rail crossing death highlights risks for people in wheelchairs: watchdog

Transportation Safety Board points to ‘persistent risks faced by persons using assistive devices’

Kelowna baby snatcher pleads guilty

Harold Giffen Clarkson Nyren is sentenced to two years probation

B.C. teens wanted in double homicide, suspicious death spotted in Manitoba

Kam McLeod and Bryer Schmegelsky were thought to have been seen in the Gillam area

Most Read